April 29, 2013 Leave a comment
This past weekend I participated in a walk-a-thon fundraiser for the National Epilepsy Foundation at Forest Park in Springfield. It was a beautiful day and the turnout was tremendous given it was the first walk for epilepsy in this area. There were many teams of people who were walking on behalf of someone close to them. I walked for my sister, Mary, with my mother, father and a friend of the family’s who struggles with epilepsy herself. Our group was named Mary’s Marauders in honor of my sister though we also walked for our friend, Nicole, the you young lady who walked along with us.
Epilepsy itself goes unnoticed unless an individual has a seizure in front of other people. It comes in many forms from petite mal to grand mal with many types in between. It is estimated that 130,000 people live with epilepsy in just four northeastern states alone. Research for this condition is underfunded, which is why we walk. All around the country fundraisers are held in an attempt to educate people as well as to gain the monies needed to promote further research. Many people are completely unaware of the nature of this condition and it is up to those who have the knowledge to spread it to the masses. As I said previously it is a silent disability, one that no one knows about just by looking at a person. Perhaps this is why research is limited.
I’d like to invite all who read this to further educate themselves about epilepsy. It is quite possible that we all know someone living with it. It so frequently goes unnoticed that people tend to forget that it is out there affecting people in their every day lives. For many with epilepsy life becomes limited due to seizures brought on by flashing or florescent lights, or just by the nature of the condition. Epilepsy might be unseen but it is there. Please log on to your computers or talk with someone who has extensive knowledge and find out more about it.